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Share Your KCNT1 Story

Share your story

Every family’s journey to a diagnosis of KCNT1 is different.
Every family situation is different, and how each family adjusts is different.
Please share your story and help us spread awareness for KCNT1 related disorders.

RECORD A VIDEO HERE
(This will take you to an external link to VideoRequest.)

You may also fill out the form below and email photos to support@kcnt1epilepsy.org.
Please provide permission through our Photo Release Form.

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Your KCNT1 Warrior

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