October is KCNT1 Awareness Month
Turning Awareness Into Action
KCNT1-related epilepsies affect children and families around the world. By raising awareness in October, we can improve understanding, support earlier diagnosis, connect families to resources, and reduce isolation—while fueling research and better care.
2025 Events Timeline
Join us throughout the year for meaningful connections, education, and community building. Mark your calendars for these important events designed to support KCNT1 families and advance research.
Keto Diet Webinar (Virtual Event)
Ohio Families Unite (Columbus, OH)
Meet the Scientist (Virtual Event)
Conference Registration Deadline (Important Deadline)
All Month – Create your Clinical Research ID (CRID)
Visit TheCRID.org to create your unique CRID and be research-ready. Big announcements coming—get set now.
How You Can Get Involved
Every action counts in building awareness and supporting the KCNT1 community. Choose the ways that work best for you and your family to make a meaningful impact.
Host Your Own “Rock, Run, Roll” Walk
We’ve made it simple with a DIY Host-a-Walk Kit—pick a route, set a goal, print signs/QRs, and walk with your community to raise KCNT1 awareness.
Start a Fundraiser
From bake sales to birthday campaigns or livestreams, your efforts directly support families and fuel KCNT1 research. Every dollar makes a difference.
Spread the Word
Follow and share our daily posts in October. Use #KCNT1Awareness and #AdvocateForKCNT1 to amplify the message across all platforms.
Request a Proclamation
Ask your city, county, or state to recognize KCNT1 Awareness Month. Use our mini-guide with email and proclamation templates to make the process simple.
Share Your Story
Whether you’re a parent, sibling, or grandparent, your voice helps others feel less alone—and drives understanding. Your experience matters and can inspire others.
Why Awareness Matters
Raising awareness about KCNT1-related epilepsies creates ripple effects that touch every aspect of the patient and family experience. When we shine a light on this rare condition, we open doors to better outcomes and stronger communities.
Faster diagnosis & better care
Families and clinicians spot signs earlier and connect to treatment pathways. Early recognition means faster access to specialized care and appropriate interventions.
Community & resources
Parents, siblings, and grandparents find support and practical tools. No family should navigate this journey alone—awareness builds bridges to help.
Momentum for research
Visibility encourages collaboration and investment in KCNT1 science. More awareness leads to more funding, more researchers, and faster progress toward treatments.
Let’s raise our voices together. Every post, step, and conversation brings us closer to better treatments—and one day, a cure.
You’re Already Part of the Story.
What Comes Next Is Up to You.
You’ve lived what most researchers have never seen. Your story can shape what comes next — not just for your child, but for families around the world.
Host Your Own “Rock, Run, Roll” Walk
We’ve made it simple with a DIY Host-a-Walk Kit—pick a route, set a goal, print signs/QRs, and walk with your community to raise KCNT1 awareness.
Start a Fundraiser
From bake sales to birthday campaigns or livestreams, your efforts directly support families and fuel KCNT1 research. Every dollar makes a difference.
Spread the Word
Follow and share our daily posts in October. Use #KCNT1Awareness and #AdvocateForKCNT1 to amplify the message across all platforms.
Together, we’re building a future where every KCNT1 family has hope, support, and access to the best possible care.
