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Meet Raphael

Raphael

Raphael was a ray of sunshine. He brightened every room with his infectious laughter.

After being born on the 9th of July 2025, we had four wonderful and worry-free months before his first symptoms started. Unfortunately, his severe mutation put him on a difficult path with a hospital stay of about 2.5 months. During his stay, he never let anything crush his spirit, smiling and flirting with every nurse and doctor, playing with his favorite giraffes and loving music.

He was a true KCNT1 warrior and our biggest blessing. Our souls will forever be a family.

Thank you and hugs,
Sarah & Konstantin

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