Meet Ethan
Ethan started having seizures at 1 month old. He was diagnosed with KCNT1 a month later. He regressed developmentally, losing his strength and smiles. But, he expresses himself in his own special way. We know when he’s happy and when he’s frustrated. We love him through every seizure, milestone, good days and bad days. We hope for treatments and a cure as soon as possible for Ethan and all our special KCNT1 kiddos.
