• Skip to primary navigation
  • Skip to main content
  • Skip to footer
Logo
  • Home
  • Understanding KCNT1
  • Parents & Caregivers
    • Newly Diagnosed
    • Early-Onset KCNT1 Epilepsies
      • Medications for Early-Onset Epilepsies
    • Sleep-Related Hypermotor Epilepsy (SHE)
    • Symptoms & Treatments Overview
    • Treatment Approaches
    • Genetics 101
    • Life Expectancy & Long-Term Planning  
    • Financial & Caregiving Tools
    • Support & Resources
    • Sign Up for Our Parent Contact Form
    • Share Your KCNT1 Story
    • Find a Doctor
    • World Map (Census)
  • Professionals
    • Clinicians
    • Industry
    • Researchers
      • Biospecimens
      • KCNT1 Funding
      • Publications
  • Research & Clinical Trials
    • Parents & Caregivers
    • Clinical Trials
    • Clinical Trial Educational Resources
  • Support Us
    • Get Involved
    • Ways to Give
      • Shop our Store
      • Host a Fundraiser
  • About Us
    • Our Mission
    • Our Team
    • Our Advisors
    • Our Approach
    • Our Partners
    • Our Families
  • News & Events
    • FDA Patient Session
    • KCNT1 Remembering Day: October 21
    • News
    • Newsletter
    • KCNT1 in Orlando
    • Past Conferences
      • KCNT1 Anaheim Family Conf
      • Million Dollar Bike Ride
  • Contact
  • D♡nate

Orange County Doctor Helps Lead the Fight Against hi sons Rare Disorder

Feb 24

Co-founder Justin West was interviewed for Rare disease week, where he shares his story and determination to find treatments for all the children with KCNT1 related illnesses.

KCNT1 Epilepsy Foundation Launches Digital Natural History Study In Partnership with Invitae Ciitizen

KCNT1 & Good Day Chicago Fox32

Footer

fluid-image
Donate Today
  • Parents & Caregivers
  • Researchers & Professionals
  • About Us
  • Contact
  • Subscribe
Gold 2025 Candid Seal
GAA Member Badge
Citizen Health Proud Partner 2025 Website Badge

Privacy Policy

© 2023 KCNT1 Epilepsy Foundation | All Rights Reserved | Disclaimer

EIN 84-2748218

Copyright © 2026