Million Dollar Bike Ride 2024
June 8th, 2024
JOIN team kcnt1 AND RIDE for Research!
The KCNT1 Epilepsy Foundation has been invited to participate in the 11th annual Million Dollar Bike Ride (MDBR) on Saturday, June 8th, in Philadelphia. Whether you’re a serious cyclist or simply someone who cares for our community, we hope you will join us for this fun-filled day! Connect with other rare families and support our Ride for Research! If we raise $30,000 the Orphan Disease Center at UPenn will match it and apply 100% towards KCNT1 research! REGISTER to help fundraise or volunteer! Be sure to check “TEAM KCNT1” !
Last year our teams raised $39,364 which is going to a lab at University College London to work on a gene editing treatment for KCNT1!
WHEN: Saturday, June 8th, 2024 at the University of Pennsylvania
WHERE: Streets of Philadelphia, PA
NOTE: 100% of registration and fundraising money goes towards KCNT1 research!
The KCNT1 Epilepsy Foundation and the University of Pennsylvania Orphan Disease Center (ODC) invite you to participate in the Million Dollar Bike Ride (MDBR). This annual festival brings together families, friends and supporters representing 30 rare disease organizations to raise funds for rare disease research and spread awareness of rare diseases. Team KCNT1 will ride to raise funds to further research on KCNT1-related disorders in our quest for a cure! We hope you will join us or donate to the cause.
The money raised by each team funds one or more research grants to study their specific disease. Last year, over 850 cyclists and volunteers came together on Penn’s campus to ride either 10, 32, or 70 miles starting in the city and across the Greater Philadelphia region. The MDBR has raised over $14 million in eight years to fund research grants. The ODC ensures that 100% of the funds raised go towards these grants, with no overhead taken out. After the event, grant applications will be open to the international scientific community — scientists worldwide will be eligible to apply. We are honored to have been chosen to participate!
Our goal is to raise $30,000 for KCNT1-related research. We need to raise a minimum of $20,000 for a research grant. All funds raised between $20,000 and $30,000 will receive a dollar-to-dollar match by the Orphan Disease Center to be used for a 1-year pilot grant.
Team KCNT1 will need in-person riders and volunteers! You must be 16 years or older to participate as a cyclist and 18+ to volunteer. (Children can join you on your bike or ride their bikes but at their own risk.) There will be fun activities and food for the whole family all day long! We hope you will join us!
We will have a booth and an area to gather and a booth to display info about KCNT1. For planning purposes, most riders will complete their ride by 4:00. Lunch vendors arrive between 11-1:00.
Any questions? Please reach out to Sarah at sarah@kcnt1epilepsy.org We thank you for your ongoing support!
How to Join Our Team!
Registration with Fundraising
*receive a Team KCNT1 t-shirt, MDBR professional-style cycling jersey, and an MDBR t-shirt to commemorate the event
$30 and must raise at least $250 by June 10th. Register for TEAM KCNT1.
100% of your registration dollars and fundraising goes towards the KCNT1 research grant.
Cyclist with optional Fundraising
*Receive a TEAM KCNT1 t-shirt and an MDBR t-shirt to commemorate the event. We ask you to opt-in for fundraising so you appear on our Team page.
Registration Fee:
$65 (before 3/31/23) (25% discount if you register on Rare Disease day 2.29)
$85 (4/1 – 6/3/23)
$100 (Day of event)
100% of your registration dollars go toward Team KCNT1’s research grant
Volunteer
* You still need to register for Team KCNT1. You’ll receive a TEAM KCNT1 t-shirt and an MDBR t-shirt to commemorate the event
Volunteers are needed in the start/finish area, as course marshals, aide station personnel and ride leaders/support. Must be 18 years old to volunteer.
Organize a Virtual Event in Your Home town
Register for a Virtual event and create a Team Page! Participants can order a t-shirt from our Bonfire store and find supporters to contribute to our Ride for Research Campaign! (Email info@kcnt1epilepsy.org if you are interested)
