Hope Beyond Limits: Be Relentless With Your Impact

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Empower Research Today, Cure KCNT1-related Epilepsy Tomorrow!

Your donation today can empower groundbreaking research for tomorrow’s treatments and a cure for KCNT1 -related epilepsy. Every donation fuels innovative research, providing hope to children like Nico affected by this genetic disorder. Together, we can make a difference in the lives of those battling KCNT1 and move closer to a cure. Donate here

Be relentless with us and fight for the children like Nico!

Seizures can strike within hours of days of a baby’s birth… and they can lead to permanent brain damage or even death.

You can fund important research, family support programs and education materials

“The Foundation has catalyzed dialogue and collaboration between researchers that has generated new ideas and implementation of studies to develop and test new drugs to treat KCNT1-related epilepsy.”

Matt Weston, PhD, Virginia Tech

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Making a Difference

“Since our son’s diagnosis in 2021, this Foundation has been a beacon of hope and a source of invaluable information.

The information, guidance, and resources offered have been a tremendous help in navigating the challenges that come with our son’s diagnosis of KCNT1 related epilepsy. Their resources have not only educated us but also empowered us to make informed decisions about his care and wellbeing.

In addition to the practical information, this Foundation has also created a sense of community and connection with other families. Knowing that we are not alone in this journey is comforting, and this Foundation has played a significant role in fostering a supportive network for families like ours.

I am deeply grateful for their dedication to making our journey more manageable, more informed, and filled with hope.”

Lorena, KCNT1 Warrior Mom

“I wanted to tell you how much I appreciate the KCNT1 Foundation and the work that you do. Being able to provide families who have a new diagnosis such an incredible wealth of resources and community is invaluable, and I admire the tireless advocacy work that goes into pushing research on treatments forward.”

Laura, MMSc, CGC

Licensed, Certified Genetic Counselor

Children’s Healthcare of Atlanta Neurosciences

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