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Host a Fundraiser

Host a Fundraiser to Support KCNT1 Families and Research

Whether you’re honoring a loved one, raising awareness in your community, or rallying friends online—your fundraiser can make a real impact. Every dollar helps us accelerate research, connect families, and build hope for a better future.

We invite you to join the growing network of families and supporters fundraising for the KCNT1 Epilepsy Foundation.

What is a Third-Party Fundraiser?

A third-party fundraiser is an event or campaign that is organized independently by individuals, families, or groups who want to support our mission. While the event is not sponsored or run by KEF, we’re here to help you make it successful.

How We Can Support You

When you sign our Fundraising Agreement, we can:

  • Provide a personalized fundraising link or QR code
  • Offer guidance, tips, and creative ideas
  • Supply KEF branded materials, brochures, and thank-you language
  • Approve the use of our logo (when requested in advance)
  • Share your story with our team and potentially feature your event in our newsletter or social media

We do not provide our tax exemption number, insurance, or event staffing for third-party events, but we’ll do all we can to support your independent efforts.

New! Start Your Online Fundraiser

Create your own online fundraising page directly through our Qgiv platform. Whether it’s in honor of a birthday, in memory of a loved one, or just because you care, we’ll make it easy to:

  • Share your story
  • Track donations
  • Celebrate your impact

Create a virtual team and fundraise!

Ready to Get Started?

Before launching your fundraiser, please review our toolkit and return the short Fundraising Agreement so we can support you and provide the materials you’ll need.

Download the Fundraising Toolkit:
Fundraising Toolkit PDF

Submit Your Fundraising Agreement to:
manager@kcnt1epilepsy.org

Popular Fundraiser Ideas

Soon, you’ll be able to create your own online fundraising page directly through our giving platform. Whether it’s in honor of a birthday, in memory of a loved one, or just because you care, we’ll make it easy to:

  • Host a bake sale, fun run, or neighborhood event
  • Celebrate a birthday or milestone by fundraising instead of gifts
  • Launch a social media challenge or livestream fundraiser
  • Organize a workplace giving campaign or school spirit week
  • Sell handmade items, t-shirts, or host a raffle (where legally allowed)


🎉 Facebook Fundraisers – Birthdays or Tributes

Create a quick fundraiser right from your Facebook profile. Perfect for awareness days, birthdays, or honoring a loved one.

  • 100% of donations go to us
  • No fees
  • Easy to share with friends and family

👉 Create a Facebook Fundraiser


🧾 GoFundMe – Personal or Memorial Campaigns

GoFundMe is a great option if you want to tell a longer story and raise funds in memory or support of someone affected by KCNT1.

👉 Start a GoFundMe Charity Page


Important Guidelines

Fundraisers hosted through these platforms are organized independently by supporters. The KCNT1 Epilepsy Foundation is the beneficiary of the funds raised but is not responsible for organizing, overseeing, or managing these events.

❌ Please do NOT:

  • Use our tax ID (EIN) to make purchases or book venues
  • Open bank accounts in our name
  • Collect funds personally and issue tax receipts

✅ Do:

  • Direct all donations through the approved platforms above
  • Use our name as the beneficiary, not the host
  • Contact us before using logos or branding

Request Logos & Support

Need a “Benefiting the KCNT1 Epilepsy Foundation” logo for your flyers or shirts?
Want help writing your story or promoting your fundraiser?

📧 Email sarah@kcnt1epilepsy.org with your fundraiser details.
We’re happy to share templates, messaging, or help amplify your event online.


Mail-In Donations

If you’re collecting checks, ask your donors to make them payable to:

KCNT1 Epilepsy Foundation
32531 N Scottsdale Rd, Suite 105-530
Scottsdale, AZ 85266
📝 Include the name of your fundraiser in the memo line.

Thank You

Together, we are transforming grief into action and hope into progress. Your efforts help fund life-changing research and support families facing KCNT1-related epilepsy. You are a vital part of our movement.

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