Stay Connected to What Matters
Join our community to receive updates about KCNT1 research, family stories, community initiatives, events, and opportunities to make a meaningful difference.
Whether you’re a parent, grandparent, researcher, clinician, donor, advocate, or simply someone who believes every child deserves a chance, we’d love to keep you connected.
Be Part of Something That Matters
Research advances. Families find support. New possibilities emerge.
The KCNT1 community is working toward a future with better treatments, stronger support systems, and more opportunities for children affected by KCNT1-related disorders.
When you join our mailing list, you’re not just receiving updates.
You’re becoming part of a growing community of people who care about what’s possible and want to help move progress forward.
What You’ll Receive
Stay Connected to Progress
Receive research updates, scientific developments, and news about efforts to improve outcomes for children affected by KCNT1.
Hear Stories That Matter
Learn from families, caregivers, researchers, clinicians, and advocates working together to create change.
Discover Ways to Get Involved
Whether through advocacy, fundraising, volunteering, attending events, or supporting research, we’ll share opportunities to participate in ways that fit your interests.
Updates Relevant to You
Tell us how you’re connected to KCNT1 so we can send the information most meaningful to you.
From Our Community
“Thank you for the amazing work you and the KCNT1 Epilepsy Foundation do for our entire community. By sharing research and practical information, you help families ask the right questions and advocate for the care our children need.”
– A KCNT1 Community Member
Every gift, every fundraiser, and every new connection helps move this work forward for KCNT1 families.
Join Our Community
Stay informed. Stay connected. Be part of something that matters.
Receive updates about research, family support, community programs, events, advocacy efforts, and ways to make a meaningful impact.
Why We Stay Connected
Progress happens when people come together.
Every family story shared. Every research update distributed. Every fundraiser launched. Every new supporter welcomed.
Together, these efforts help create momentum for children and families affected by KCNT1.
That’s why staying connected matters.
Help a KCNT1 Family You Love
When someone you love is affected by KCNT1-related epilepsy, it’s natural to want to help — but it can be hard to know where to start.
KCNT1 Epilepsy Foundation is a family-founded nonprofit working to accelerate research, connect families, and build the knowledge and infrastructure needed to move toward better care and future treatment options. You do not need to be an expert to make a difference. Every gift, fundraiser, share, and new connection helps bring more attention and resources to KCNT1.
Join Our Mailing List
Stay connected with research updates, family stories, events, and simple ways to get involved.
Give Now
Make a donation in honor of someone you love and help support KCNT1 research, family resources, and programs.
Start a Fundraiser
Create a birthday, tribute, workplace, or community fundraiser. We’ll help you get started.
