Why join us in Denver?
KCNT1 is rare, but this community is moving with urgency. Our Denver gathering is designed to create a focused space for scientific exchange, clinical learning, family education, and meaningful collaboration across the KCNT1 ecosystem.
Thursday, Professional Day
Scientific Roundtable
Thursday, December 3, 2026 • Grand Hyatt, Denver
Clinical updates, trial and research news, and a working session for clinicians, researchers, and industry to align priorities.
Rare Reception
5:30 – 8:00 PM
Thursday, December 3, 2026 · evening 5:30 – 8:00 · Grand Hyatt, Denver Conference Center
38th Floor
A joint reception with Cure SYNGAP1, SLC6A1 Connect, Citizen Health, and Combined — open to everyone across the community.
Friday, Family Day
Family conference
Friday, December 4, 2026 • Grand Hyatt, Denver
A day for patients and caregivers, covering research updates, care strategies, and family support.
Who Will Be There
Clinicians, clinical researchers, foundation partners, CAB members, industry collaborators, and families from around the world.
What You Will Learn
The latest on KCNT1 care considerations, clinical trials, emerging biology, research discoveries, and ways to work together to improve outcomes.
Conference Schedule
Scientific Roundtable (Professionals)
Thursday, December 3, 2026
- KCNT1 care across the lifespan
- Clinical trials and therapeutic development
- New research and emerging biology
- Collaborative discussion to align priorities
KCNT1 Family Conference
FRIDAY, DECEMBER 4, 2026
- Foundation initiatives and patient registry insights.
- Clinical trials and research updates
- Care strategies and management of comorbidities
- Genetic counseling and family support
More details and a full agenda and schedule will be finalized and shared as we get closer to the date.
Plan Your Trip
Book Your Hotel – Grand Hyatt Denver
- Discounted rooms on site are available through November 10th, 2026
- Grand Hyatt, Denver, book HERE
- (Note: Hotel booking link assumes a 7-night stay. You can adjust to a shorter stay while booking your room on the website)
- Anyone experiencing financial hardship can contact us to have this waived! (Apply here.)
Grand Hyatt Denver
1750 Welton St
Denver, CO 80202
Looking for visibility during AES Week? Learn about Rare Disease Reception Sponsorship Opportunities here.
Please Note:
The KCNT1 Family & Professional Conference is a separate event from the AES Annual Meeting. Registration for the KCNT1 conference does not include registration for AES.
The American Epilepsy Society (AES) Annual Meeting will be held December 4-7, 2026, in Denver. Our professional programming on December 3 and family regference on December 4 are scheduled adjacent to AES to make it easier for clinicians and families to attend both.
Learn more about AES at www.aesnet.org.
