Grandparents United for a Better Future
Standing beside our families—and helping bring treatment options closer for our grandchildren.
Grandparents play a unique role in this journey.
You support your families, carry their worries, and stand beside them through every step.
Grandparents United brings you together with others who understand—and gives you a way to make a meaningful impact.
What It Means to Be Part of Grandparents United
Connect
Meet other grandparents who understand the unique experience of loving and supporting a grandchild affected by KCNT1.
Support
Help families feel less alone by sharing encouragement, experience, and community.
Advance Progress
Use your voice, time, and support to help accelerate research and better treatment options.
The Difference You Can Make
Together, grandparents can:
- Strengthen the KCNT1 family community
- Support research toward better treatments
- Raise awareness and help families find one another
- Create hope and momentum for the next generation
Why We Show Up
“As grandparents, you want to do everything you can. This gives us a way to help—not just our family, but others too.”
How Grandparents Can Get Involved
- Join Grandparents United
- Make a gift in honor of your grandchild
- Participate in community and fundraising events
- Share your family’s story
- Help raise awareness of KCNT1
Join the Community
Whether you want to connect with other grandparents, participate in an event, help raise awareness, or simply stay informed, we’d love to have you with us.
Join Grandparents United by completing the short form below.
Stay Involved
Meet & Connect
Join virtual meetups, family gatherings, and other opportunities to connect with grandparents who understand.
Volunteer & Advocate
Help raise awareness, support events, share your experience, or lend your skills to the KCNT1 community.
Give
Make a gift, honor your grandchild, or explore ways to make a lasting impact through legacy or eligible retirement giving.
Grandparents have always been a source of strength.
Together, you can also be a force for progress.
