Grandparents United for a Better Future
Standing beside our families—and helping bring treatment options closer for our grandchildren.
Grandparents play a unique role in this journey.
You support your families, carry their worries, and stand beside them through every step.
Grandparents United brings you together with others who understand—and gives you a way to make a meaningful impact.
What It Means to Be Part of Grandparents United
- Connect with other grandparents who understand this experience
- Support research working toward real treatment options
- Help ensure families don’t face this alone
- Be part of a community creating a path forward
The Difference You Can Make
- Move research closer to new treatment options
- Support families navigating care and uncertainty
- Build momentum that can impact other rare diseases
Build momentum that can impact other rare diseases
Our Community
A community built on love, strength, and hope.
Why We Show Up
“As grandparents, you want to do everything you can. This gives us a way to help—not just our family, but others too.”
Ways to Be Part of This
- Join Grandparents United
- Make a gift in honor of your grandchild
- Participate in events like the Million Dollar Bike Ride
- Share your family’s story
Build momentum that can impact other rare diseases
Be part of something meaningful.
Join the Community
Grandparents have always been a source of strength.
Together, you can also be a force for progress.
